NLHI National Registry

NLHI is at the forefront of national cardiovascular registry research. For this purpose, the Dutch Cardiomyopathy Database will be initiated within the NLHI Data- and Biobank, coordinated by NLHI and installed within the NLHI Data- and Biobank. Funding for this is currently acquired through existing consortia and interested external partners. The Dutch Cardiomyopathy Database will serve as a registry framework for cardiomyopathy research (HCM and DCM) and other domains, uniting several local research protocols and academic centers through a joint data registry agreement. Expected start of inclusion: Q1 2025.  

NLHI Registry Core team: dr. Peter-Paul Zwetsloot (coordinator), Maurits Sikking (vice-coordinator), dr. Michiel Minten (LDOT specialist), dr. Erik van Iperen (data manager), Evelien van der Schaaf (data manager).