About us
The AMYCOR registry is a project of the Netherlands Heart Institute (NLHI). It aims to improve cardiac amyloidosis care by gathering high-quality clinical and diagnostic data from patients across the Netherlands.
By combining data from multiple expert centers, AMYCOR provides valuable insights into disease presentation, diagnosis, treatment patterns, and outcomes. These insights support both clinical decision-making and scientific research, helping to enhance early recgnition and optimize patient care.
Our ultimate goal is tof oster collaboration, accelerate research, and improve the quality of life for patients with cardiac amyloidosis.
[Link richting RedCap]
For professionals
The AMYCOR registry collect nationwide data on cardiac amyloidosis to support research and clinical care. Our goal is to build a shared knowledge base that advances diagnosis, treatment, and outcomes. We welcome collaborations with clinicians and researchers. For research proposal, data access, or other partnership opportunities, please contact the AMYCOR team.
Governance and privacy
The AMYCOR Registry is a national, longitudinal, observational cohort that collects data from patients with cardiac amyloidosis in the Netherlands. The study has been reviewed by the local Medical Research Ethics Committee( METC) and has been qualified non-WMO). Furthermore, all patients included in the registry have provided written consent.
